Here's My Story and Why I Advocate...

 

I've battled Lupus (SLE) for the past 16 years, I've also been a full time Strength and Conditioning Coach for the past 16 years, and a previous gym owner for 7 years. I was diagnosed at age 20 just months before my senior college basketball season. Fortunately I was able to play my senior season despite my lupus diagnosis, however, it took quite a toll on me physically and made my disease much worse.

 

In 16 years battling lupus I have had two organ failures, countless hospitalizations, and my life has been completely flipped upside down by this brutal, incurable disease. Lupus however has also given me a new appreciation, focus, and outlook on life, whereas before I was very distracted and not paying attention to the important things. So for that I am grateful. 🐺🦋💜

I was hospitalized in March 2018 for class IV lupus nephritis and when I got out of that damn hospital bed that day I decided to dedicate my time to starting a Lupus Awareness Project, "The Lupie Warriors" which includes my "Life with Lupus" Vlog on YouTube and a Podcast (co-hosted with my fiancee Amy @thelupuswifey) titled "Lupus Uncensored" (@lupus_uncensored on IG). I also enjoy advocating for lupus and am currently an Ambassador for the Lupus Foundation of America's Florida Chapter 2018-2019 term.

 

I manage an Instagram account titled the @lupus_wolfpack_official which is a safe space for lupus warriors, advocates, and supporters who want to gather, join forces, and rally to collectively push the lupus advocacy needle forward.💜

**HEALTH UPDATE: October 2019**

Unfortunately due to some new diagnoses my health has taken a major hit. At this time I am going to need to postpone attending any events until my health improves. I will however still be advocating for lupus awareness remotely from bed while recovering at home so don't hesitate to reach out. Responses will be slow but I try my best to respond to everyone.  Thank you for your understanding, patience, and support at this time. 🐺🦋💜

  

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Hello everyone!

I'm Sara 🙋🏻‍♀️ The Lupus Trainer

IG @thelupustrainer

🐺 💜 🦋 

    Diagnosis History:
  • Lupus SLE in 2003
  • Rheumatoid Arthritis in 2003
  • Raynauds disease in 2003
  • Lupus Nephritis in 2016
  • Kidney Biopsy to determine Class IV Lupus Nephritis in 2018
  • Pleurisy (inflammation around the lining of the lungs, causes lung pain when breathing) 2015
  • Acute Kidney Failure in 2018
  • Secondary Adrenal Insufficiency in 2018
  • Non-Diabetic Hypoglycemia in 2018
  • Dysautonomia in 2019
     
    Other Medical Info:
  • 4 Vertebrae Disc Herniations at
    L2-L3, L3-L4, L4-L5, and L5-S1
  • Major back surgery in 2013
  • Permanent nerve damage in right leg
    (I lost 50% sensation in my entire right leg and foot)
  • Pneumonia 6+ times  
  • Hospitalized countless times
  • I went through several doctors before I found my current medical team that I am happy with which includes my Rheumatologist (autoimmune), Nephrologist (kidneys), Endocrinologist (handles my adrenal insufficiency issues), Cardiologist, Pulmonologist, Gastroenterologist, Hematologist, a Dysautonomia specialist, and my Primary Care Physician.
    Career Experience/Credentials:
  • Division I Collegiate Strength and Conditioning Coach
  • Division II Collegiate Strength and Conditioning Coach
  • Adjunct Professor of Exercise Science
  • Personal Training & Fitness Manager
  • Previous Gym Owner for 7 years
  • CrossFit Lv1 Trainer*
  • ISSA Certified Personal Trainer*
  • ISSA Certified Specialist in Performance Nutrition*
  • Bachelor's Degree, Business
  • Former Division I Basketball Player 
  • Former Division I Academic All-American
*Unfortunately due to my declining health I have had to stop working and close my old gym so I have not been able to fulfill my continuing education credits. Therefore these certifications are currently inactive at this time.